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The Teaching Research Institute hosts several lists on
deaf-blindness. Visit the archives
page for a current listing. If you are interested in starting you own
deaf-blindness related list. contact LISTSERV® Administrator, Randy Klumph
- klumphr@wou.edu
American
Association of the Deaf-Blind Membership list - AADB-L To subscribe,
send a blank message to: aadb-l-subscribe-request@tr.wou.edu
CHARGE Listserv The topic of this list is CHARGE
Syndrome. Use the
online
form to subscribe (launches new browser), or contact
Casey Fisher for assistance.
CIHEAR- Cochlear Implant Support Support and information
related to Cochlear Implant. Information about the list can be found at
http://cihear.com/about.html. To
subscribe to this list go to http://groups.yahoo.com/group/CIHear/
DBACTION -
Deaf-Blind Citizens For Political Action This list is for adults who are
deafblind or those whose combined hearing and vision losses ("DB") are severe
enough to require more comprehensive deafblind services than are being offered
that meet their individual needs and enables them to continue living
independently. We are a grassroots group whose goal is to learn how to advocate
for our needs, how to use the legislative process, how to seek funding sources,
and how to find political solutions that will help make life better for all DB
Americans. Non-DB people and professionals are also welcome. To subscribe, send
a blank message to DBACTION-subscribe-request@community.lsoft.com
or contact owner Melanie Bond
Deaf-Blind
Education Mailing List (DBED-L) The topic of this list is
Deaf-Blind Education. The purpose of this list is to share information,
inquiries, ideas and opinions. This list is open to all persons interested in
issues regarding deaf-blind education. To subscribe to this list, send a blank
email to: dbed-l-subscribe-request@tr.wou.edu
or contact Randy Klumph for assistance.You
can also subscribe to this list via a
web
interface.
Deafblind Guide Dog Users This list is for deafblind
guide dog users, puppy raisers whose dogs have been passed to a deafblind
handler, or have a friend who is deafblind and is using a guide dog. This list
focuses on deafblindness and our guide dogs. If you are interested or want more
information contact: guidedogs4ever@hotmail.com To
subscribe send a blank message to:
db-gdog-users-subscribe@yahoogroups.com
or contact db-gdog-users-owner@yahoogroups.com
for assistance.
Deafblnd
Mailing List (DBL) The topic of this list is Deaf-Blindness. The
purpose of this list is to share information, inquiries, ideas and opinions on
matters pertaining to Deaf-Blindness. This list is open to professionals,
persons who are deaf-blind, and to their families and friends. To subscribe to
this list, send a blank email to:
deafblnd-subscribe-request@tr.wou.edu
or contact Randy Klumph for assistance.
You can also subscribe to Deafblnd via a
web
interface.
Deaf-Blind Mailing List (Sordoceguera) - Spanish This
list is entirely in Spanish and is for Deafblind people, families, volunteers,
professionals, investigators and educators. Hosted in Spain by
RedIris, a Spanish academic
and investigation network.
To subscribe to this list, send the following in the body of an
e-mail message.
SUBSCRIBE sordoceguera firstname
lastname
Send to listserv@listserv.rediris.es or
contact Ricard López for
assistance.
DBSOCIAL An
informal discussion goup to discuss daily events, concerns, or interests. To
subscribe send a blank message to
dbsocial-subscribe-request@tr.wou.edu
or contact owner John Cunniff
DBTechies An
informal discussion list regarding new technology for deafblind people as well
as discussions of technical troubles with current equipment or software. To
subscribe, send a blank message to
dbtechies-subscribe-request@tr.wou.edu
or contact owners John Cunniff and
James Gallagher.
Deafblind Women Chat List This list aims to support
Women who lives with the daily challengers of Deafness and Blindness. Issues
discussed may include Fashion, Relationships. But most importantly this list is
for all Deafblind Women to support each other. To subscribe to this electronic
discussion group via the web, go to
Yahoo Groups. To
subscribe to this list via e-mail, send a blank e-mail message to
dbwomenchat-subscribe@yahoogroups.com
or contact Michelle
Stevens for assistance. Great Plains Deafblind List (Great Plains
DB) This list is a support group of people,families, and professionals
from the Helen Keller National Center Region #7 - The Great Plains Region (KS,
MO, NE, and IA), who share common experiences and interests with individuals
experiencing various types and causes of deafblindness. While the topics,
discussions, and issues may frequently change according to the given needs
and/or desires of the list's subscribers, all discussions should primarily
relate to giving support to people experiencing and/or in some way connected to
deafblindness. To subscribe, send a blank email to:
gpdblist-subscribe@yahoogroups.com.
Or subscribe online at http://groups.yahoo.com/group/gpdblist
Intervener-Para List The Intervener/Para list is
provided to support the development and ongoing networking of a Community of
Practice around the use of interveners and paraprofessionals with children and
youth who are deafblind. Its purpose is to facilitate communication,
information sharing, and problem solving among professionals, interveners,
paraprofessionals, parents, service providers, and anyone interested in this
issue. Subscribe online at:
http://lists.usu.edu/mailman/listinfo/intervener-para
or contact the list owner: Intervener-para-owner@lists.usu.edu.
National
Family Association for Deaf-Blind List This membership list is for
parents and families. To join, send a blank email to
nfadb-subscribe-request@tr.wou.edu
National Federation of the Blind - Deaf-Blind Division Mailing
List serves as a vehicle in which deaf-blind people can exchange
information on all aspects of daily life including adjustments to
deaf-blindness, sources in obtaining assistive devices designed for deaf-blind
persons, and other matters pertinent to persons who are deaf-blind, teachers,
families, or other professionals.
Professionas Serving Deaf-Blind Consumers (
PSDBC). To provide a forum for professionals working with and
serving deafblind consumers to discuss issues and topics related to their
professional endeavors. To subscribe send a blank email to
psdbc-subscribe-request@tr.wou.edu Refsum's Disease Mailing
List Refsum's Disease is a recessive genetic disorder and is
characterized by retinitis pigmentosa, anosmia, peripheral neuropathy, hearing
loss and less commonly, congenital abnormalities. To subscribe, send a blank
message to refsums_discussion-subscribe@yahoogroups.com
or contact refsums_discussion-owner@yahoogroups.com
for assistance.
Retinal
Degeneration Discussion List (RPLIST) This list is an internet forum
for discussion, questions and opinions related to retinal degeneration. To
subscribe to this list, send a blank email to:
rplist-subscribe-request@listserv.icors.org
or contact rplist-owner-request@listserv.icors.org
for assistance. You can also subscribe to the RPLIST via a
web
interface.
RP Fresh Sight The members of RP-Friends created RP
Fresh Sight out of necessity. No other site existed where teens, pre-teens and
slightly post-teens could exchange information, share with others the
difficulties of dealing with Retinitis Pigmentosa and similar visual disorders
on a day-to-day basis, to have fun, and support each other in a safe and
private environment. But most importantly to let you know you are not alone. To
subscribe, send a blank message to:
RP_Fresh_Sight-subscribe@yahoogroups.com
or contact RP_Fresh_Sight-owner@yahoogroups.com
for assistance.
Rubella Discussion
List (HKNC_Rubella) This has been established as a vehicle for
parents, consumers and professionals to share information about any aspect of
rubella and to provide support to those living or working with someone with
congenital rubella syndrome. To subscribe to this list, send a blank email to:
hknc_rubella-subscribe-request@tr.wou.edu
or contact Nancy
O'Donnell for assistance. You can also subscribe to HKNC_Rubella via a
web
interface.
Sight and Sound Impaired (SASI) Sponsored by
American Council for the Blind (ACB). SASI
members, friends, family, and service providers are welcome to participate in
lively discussion. To join, send a blank e-mail to
sasi-subscribe@acb.org.
Usher's
Syndrome Mailing List (USHERS) Ushers List is an internet forum for
people with Ushers, their parents, friends, spouses and service providers. To
subscribe to this list, send a blank email to:
ushers-subscribe-request@tr.wou.edu
or contact Randy Pope for
assistance. You can also subscribe to Ushers via a
web
interface.
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